Living with Stroke© is a six-week self-management program developed by the Heart & Stroke Foundation for individuals with stroke and family/informal caregivers. Sessions are offered in Belleville, Kingston, Brockville and Perth, one to two times/year by the Stroke Group Facilitators. Each program involves one session (1.5 to 2 hours) per week for six weeks. No cost to participate. Information on next program in your area can be obtained by using the contact information on the relevant Support Group brochure.
The Communication Group in Belleville is a program for stroke survivors who are experiencing aphasia. Groups are facilitated by a speech-language pathologist. Registration for the Fall 2016 Aphasia Conversation Group is now open. Aphasia Conversation Group
The Stroke Network of Southeastern Ontario, in partnership with the South East Community Care Access Centre (CCAC) and the SouthEasthealthline.ca, has produced an online database of services available to people with stroke. This database includes information on rehabilitation, transportation, community services, psychosocial support, recreation, adapted equipment, home renovation and income assistance and has been designed to provide information on these topics and many others through a user-friendly format. Persons with stroke and their families as well as health care providers will find the site to be an invaluable resource. The site may be accessed by:
An interactive system navigation tool has been created by the Centre for Studies in Aging and Health to help healthcare providers and the public to search for the services across Southeastern Ontario that might be useful in recovery following conditions that include stroke. The database includes outpatient and community-based rehabilitation services and community support services. You can search this database by type of service using an interactive map.
Please use the FASTlinks Web-based Maps to access this information.
Three Commuity Reintegration Questionnaires have been developed to facilitate the community reintegration of stroke survivors and their family members following hospital discharge. These questionnaires can be used along with the preceding "Community Resource Directories for Stroke Survivors and Care Partners" as support resources to identify services/organizations that could address needs identified in the questionnaires.
The Screening Questionnaire is intended to be used during the initial visit to primary care post-discharge from acute or rehab. The questionnaire was designed to be administered by a care team member (eg, physician, nurse practitioner, RN, case manager). Any questions answered with a "NO" highlight areas of potential need that should be addressed. This questionnaire is designed to target areas of immediate, practical need.
The Stroke Survivor Questionnaire is intended to be completed by the stroke survivor during a subsequent visit and is designed to identify additional supports that would benefit the stroke survivor and family at a later stage in their recovery journey (eg, three months, six months). This questionnaire may be repeated at various intervals to identify changing needs.
The Caregiver Questionnaire essentially mirrors the Stroke Survivor Questionnaire with the addition of a few caregiver-targeted questions. The purpose of asking the caregiver to complete a similar questionnaire is to identify where there may be discrepancies between the stroke survivor's perception and the caregiver's perception. This provides an opportunity for diaglogue with the healthcare provider to ensure that all needs are captured. As with the Stroke Survivor Questionnaire, this is to be completed subsequent to the initial primary care visit and may be repeated at intervals as care and support needs evolve.
These directories are relevant to stroke survivors and care partners
The two resource sheets below provide a listing of supports and services which would be of interest to clients and caregivers who have experiences a stroke and to health care providers working with individuals who are living with the affects of a stroke. Each of the listings includes embedded links where available. One resource is specifically focused on Community and one on Long Term Care and each document is divided into two sections; the first section in each document is targeted at clients/caregivers and the second section is targeted at health care providers.
This resource provides a listing of community-based meal services including special diets such as textured meals. This listing provides information current to December 2016. Users are also encouraged to refer to the SE Healthline Meal Delivery Services and SE Healthline Frozen Meals.
The Guide developed by March of Dimes, Stroke Recovery Canada is an excellent free resource for both stroke survivors and caregivers. The Guide provides "practical tips for daily living, relevant medical information, as well as stories from caregivers and survivors. In addition, there are articles on rehabilitation, spasticity, community reintegration, post-stroke relationships, adapting your environment, and lists of useful contacts." (Stroke Recovery Canada)
Family Caregivers Voice (FCV) is a family caregiver-led group promoting family caregivers' local support groups and encouraging self-advocacy through education. Family Caregivers Voice also advocates for changes to the health care system which would improve the life of caregivers. The FCV website includes a video presentation on The Stages of Caregiving.
Please visit the FCV website to learn more and to view the video.