New Patient Journey Map for Stroke Survivors & Families in the South East
For information, please click on the following link Patient Journey Map
Stroke Support Groups in Southeastern Ontario (Brochures)
- **Regional Referral Form**
- Southeast Stroke Support Group Services
- VON Stroke Services Support Groups
- Summary Listing of Hastings & Prince Edward Stroke Support Groups
- Belleville Stroke Support Group
- Prince Edward County Stroke Support Group
- Trenton Stroke Support Group
- Brockville, Perth and Smiths Falls Stroke Support Groups
Living with Stroke
Living with Stroke© is a self-management program developed by the Heart & Stroke Foundation for individuals with stroke and family/informal caregivers. Sessions are offered in Belleville, Kingston, Brockville and Perth, one to two times/year. Each program consists of 1.5 to 2 hour sessions each week for 6 to 8 weeks. There is no cost to participate. Information on the next program in your area can be obtained by using the contact information in the Stroke Support Group brochure listed in the tab above – Stroke Support Groups in Southeastern Ontario.
Aphasia Supportive Conversation Groups
Aphasia Supportive Conversation Groups are being offered in Kingston, Perth, Brockville and Belleville. For further information, please see below.
- Aphasia Supportive Conversation - Regional
- SLP Aphasia Conversation Group - Kingston
- Aphasia Support Group - Kingston
- Aphasia Supportive Conversation - Perth
- Aphasia Supportive Conversation - Belleville
- Aphasia Supportive Conversation - Brockville
The Quinte Aphasia Conversation Group is a gathering of adults aged 35-88 who have difficulty getting their message out (expressive aphasia) and/or taking a message in (receptive aphasia). Collaboratively hosted by Quinte & District Rehabilitation and Community Care for South Hastings, the group is facilitated by a Speech-Language Pathologist. Meeting once a week for eight weeks during a fall and spring session, the group shares experiences, learns more about aphasia, supports each other and practices communicating. For Stroke Awareness Month in 2018, the group helped create this video as a way to enhance public and health care provider awareness of aphasia and to highlight key messages about what it’s like to live with aphasia.
Click here to view the video
Elyse Shumway is a Speech-Language Pathologist who specializes in communication disorders. Elyse works for the Aphasia Institute as the Manager of Clinical and Education Services, and as an adjunct lecturer at the University of Toronto, all while maintaining her role in private practice. Elyse was the keynote speaker for the recent Aphasia Advocacy event "The Right to Accessible Communication with Aphasia: It's a Basic Human Right".
- Click here to see Elyse's presentation.
Stroke Specific Community Exercise Groups (Posters)
- Regional Stroke Specific Exercise Groups
- Trenton Stroke Recovery Exercise Program Poster
- Smiths Falls CPHC Stroke Specific Exercise Group Brochure
- Kingston Stroke Specific Exercise Group Poster (Currently on HOLD)
- Napanee Stroke Specific Exercise Group Poster (Currently on HOLD)
- Brockville CPHC Stroke Specific Exercise Group (Currently on HOLD)
- Virtual Stroke Exercise Program - Kingston/Napanee/Quinte West
- Revved Up Exercise Program - Kingston
- Revved Up @ Home Exercise Program - Virtual
Interactive Community Resources Websites
The Stroke Network of Southeastern Ontario, in partnership with the South East Community Care Access Centre (CCAC) and the SouthEasthealthline.ca, has produced an online database of services available to people with stroke. This database includes information on rehabilitation, transportation, community services, psychosocial support, recreation, adapted equipment, home renovation and income assistance and has been designed to provide information on these topics and many others through a user-friendly format. Persons with stroke and their families as well as health care providers will find the site to be an invaluable resource. The site may be accessed by:
- Clicking on Stroke Resources to directly access the database
- Clicking on www.SouthEasthealthline.ca and then clicking on the Stroke Resources button on the right side
- Using a Search Engine (e.g. Google) with the suggested keywords South East HealthLine Stroke and clicking on www.southeasthealthline.ca in the results. Then click on the Stroke Resources button on the right side
- SouthEasthealthline One-Page Information Sheet
An interactive system navigation tool has been created by the Centre for Studies in Aging and Health to help healthcare providers and the public to search for the services across Southeastern Ontario that might be useful in recovery following conditions that include stroke. The database includes outpatient and community-based rehabilitation services and community support services. You can search this database by type of service using an interactive map.
Please use the FASTlinks Web-based Maps to access this information.
Tyendinaga Home & Community Care offers a network of services provided by qualified staff to assist individuals to remain in their own home for as long as possible. Click on the links below to learn more.
- Home & Community Care website
Your Stroke Journey Check In - A Self-Assessment Tool
Your Stroke Journey Check In is a self-assessment and self-management questionnaire that helps stroke survivors and caregivers to identify their care and support needs as well as providing a method to assess their recovery journey. The completed questionnaire can also be shared with care providers for assistance in meeting identified care needs. The questionnaire was developed in collaboration with patient advisors.
Your Stroke Journey Check In
Community Resource Guides
Community and Long Term Care Resource Listing
This resource listing provides supports and services which may be of interest to persons who have experienced a stroke, their caregivers, and their health care providers. The listing includes embedded links where available. There are two separate documents: One for healthcare providers and one for clients and their families.
Community Stroke Resource Booklets for Kingston & Frontenac County and Lennox & Addington County
Community Stroke Resource Directories in Southeastern Ontario
These directories are relevant to stroke survivors and care partners
- Kingston Community Resource Guide for Stroke Survivors
- Lanark, Leeds & Grenville Counties Community Resource Directory for Stroke Survivors and Care Partners
- Hastings and Prince Edward Counties Community Resource Directory for Stroke Survivors and Care Partners
Meal Delivery Service Options for Southeastern Ontario
This resource provides a listing of community based meal services including special diets such as textured meals. This listing provides information current to December 2016. Users are also encouraged to refer to the SE Healthline Meal Delivery Services and SE Healthline Frozen Meals.
Caregivers Are an Important Part of Stroke Recovery
It is important for caregivers to have access to information about stroke and also about their new role as a caregiver. The Stroke Support Groups in Southeastern Ontario include caregivers. The following are links to excellent sources of information when caring for a person recovering from stroke.
Supports for Caregiver of Persons Living with the Effects of Stroke, May 2022
Heart and Stroke Foundation of Canada
Ontario Caregiver Organization
A Guide to Choosing a Community Exercise Program
The Canadian Stroke Community-based Exercise Recommendations Update 2020: A Resource for Community-based Exercise Providers(link is external), is an evidence-based resource designed to help safely incorporate exercise programs in the community for individuals who have experienced a stroke. The resources include the recommendations in full, an “At-a-Glance” document that allows for a quick review, and a “Choosing a Community Exercise Program after Stroke” document to assist with the selection of an appropriate exercise program.
The Canadian Stroke Community-based Exercise Guidelines are available under Guidelines & Recommendations
Return to Work Toolkit
This Return to Work Toolkit provides stroke survivors, family members and healthcare providers with assistance to navigate the process of returning to work including information on local and provincial resources and an online Job Readiness Self-Assessment Guide.
- Introduction to the Return To Work Toolkit
- Job Readiness Self-Assessment Guide (courtesy of the Stroke Network of Southwestern Ontario)
- Benefits Questionnaire
- Financial Supports
- Return to Work Resources
- Hastings, Prince Edward Fact Sheet
- Kingston, Frontenac, Lennox and Addington Fact Sheet
- Lanark, Leeds and Grenville Fact Sheet
- Volunteering After Stroke
- Literature Review
With appreciation to the Stroke Network of Southwestern Ontario for their willingness to share the resources within their Return to Work Toolkit.
Driving After Stroke Resource for Stroke Survivors & Families
The loss of a driver’s licence following a stroke can have significant impacts on the stroke survivor and on the family. Impacts can include emotional, financial and social and returning to driving after a stroke can be a complicated and costly endeavor for stroke survivors and their families. Leveraging the work done by the Southwestern Ontario Stroke Network, the Stroke Network of Southeastern Ontario has adapted Driving After a Stroke in Ontario to reflect the services and supports available here in the southeast. The Driving After a Stroke in Ontario resource is intended to help stroke survivors (and families) understand the process required to return to driving and to connect with relevant supports & services. The resource also recognizes that not all stroke survivors will be able to resume driving and a section applicable to those individuals is included. The resource also includes two aphasia-friendly algorithms for returning to driving when the stroke survivor’s licence has been suspended and when the licence has not been suspended. As well, there is information on Driving After a TIA in Ontario. For more information or to access these resources in additional languages, contact Kayla Purdon, Regional Community & LTC Coordinator at firstname.lastname@example.org or by phone at 1-613-549-6666 X 6867.
- Driving After a Stroke in Ontario (South East version)
- Driving After a Stroke (French- courtesy of SWO Stroke Network)
- Driving After a TIA in Southeastern Ontario
- Driving After a TIA (French- courtesy of SWO Stroke Network)
- Presentation: "Driving after Stroke: The Art, Science, Legal Implications and Headaches of reporting our patients" by Dr. Hillel Finestone